Good thoughts for Phoenix Rev appreciated

Thinking of you guys and hoping for a good turn.

Sending good thoughts your way. I'll smoke a pipe in your honor, PR.

Amoebic wrote:

WHY IS EVERYBODY WHISPERING

Spoiler:

Why are you shouting?

ClockworkHouse wrote:
Amoebic wrote:

WHY IS EVERYBODY WHISPERING

Spoiler:

Why are you shouting?

Today has to have been one of the more interesting days in this journey.

It started out with a rather ignorant coworker recoiling and grabbing the hand sanitizer when I mentioned to her and a group of people that they think I have MS. Thank goodness I have very limited interaction with that person because I am not sure I could resist the opportunity to be incredibly snarky or sarcastic with every breath.

This was followed by the good news that I will be able to see the MS specialist at Barrow before Thanksgiving. I am breathing a sign of relief on this as I was hoping that I wouldn't have to wait until after the holidays. Unfortunately, I have to find a non-Barrow affiliated endocrinologist because the ones at Barrow are booked through February. Eeesh. I am not sure I have that much patience left. So, I was given several names and can proceed from there.

Then there was an odd phone call I received from a sexual health therapist who had been referred to me due to my libido issues. I am still processing all of it and may address it here when I really grasp all of it and what it entails. But, I left the conversation knowing that the people at Barrow really do give a damn about each and every patient. I am certainly blessed to have the Institute in my hometown.

I also had a wonderful pick me up when I got home. Sitting on my desk was a large package from the U.K. I wasn't expecting anything from the British Isles so my curiosity was certainly piqued. I opened the package and read the note: "Hi David and Zach. Congratulations on your anniversary. I thought this photo was so great I couldn't resist doing a drawing of it. All the best...

Here is the photo:

IMAGE(http://www.feastinginphoenix.com/images/contentment.jpg)

And here is the drawing, masterfully created by Higgledy:

IMAGE(http://www.feastinginphoenix.com/images/contentmentdrawing.jpg)

Thank you so much, Mr. Higgledy. You brought both me and Rubb Ed a great amount of joy this evening. This will be framed and be on the wall very soon.

Wow!

Phoenix Rev wrote:

It started out with a rather ignorant coworker recoiling and grabbing the hand sanitizer when I mentioned to her and a group of people that they think I have MS.

Ugh, I don't think I could've shown restrain, and probably would've remarked "it's not contagious, you moron." *facepalm*

Great news that you'll be able to see the MS specialist sooner rather than later. The wait has already been excruciating, I'll bet, so anything to shorten it is a good thing.

Glad Higgledy sent you the drawing. You guys look great, was really sweet of him!!

Keep you two in my thoughts+++ *hugs*

Phoenix Rev wrote:

Thank you so much, Mr. Higgledy. You brought both me and Rubb Ed a great amount of joy this evening. This will be framed and be on the wall very soon.

Glad it arrived safely :). I really enjoyed doing it.

Regarding the coworker, just throw out a side comment sometime that you hope she doesn't mind that you used her coffee mug.

Good luck with the specialist. At least having answers will help deal with the issue.

Nevin73 wrote:

Regarding the coworker, just throw out a side comment sometime that you hope she doesn't mind that you used her coffee mug.

Good luck with the specialist. At least having answers will help deal with the issue.

Be really coy about 'what' you used it for also

Nice work Higgledy!

Great drawing!

Also My brother has been living with MS for the past 25 years or so. If you have any Q's I'd be happy to try to answer, IF this ends up being what it is.
I'm hoping it's just gas.

Huggies to you two!

Eleima wrote:
Phoenix Rev wrote:

It started out with a rather ignorant coworker recoiling and grabbing the hand sanitizer when I mentioned to her and a group of people that they think I have MS.

Ugh, I don't think I could've shown restrain, and probably would've remarked "it's not contagious, you moron." *facepalm*

"Hand sanitizer won't help, it's actually an airborne disease." Watch her flee the room in terror.

Ugh... when it rains, it pours...

Need some more good thoughts, but this time for Phoenix Rev's dad. He apparently fell and hurt himself, and in the process got a raging infection in his leg. He's in the hospital now, being taken care of. PR's stress levels are through the roof, so him, his Dad, his Mom, and pretty much everyone around him need some positive thoughts and/or prayers right now.

*sigh* 2013 can NOT end soon enough.

IMAGE(http://www.imgion.com/images/01/Bear-Hug-.jpg)

WTF? PR, I need a serious talk with God. You set up the meeting, and then go on your way... don't worry, I will be (slightly) respectful and well behaved.

I am so sorry you guys. Big hugs amd Hello Kitty sparklies to you!

Rubb Ed wrote:

*sigh* 2013 can NOT end soon enough.

QFMFT!

Good thoughts to you all.

Positive thoughts inbound. Hope Rev's Dad is on the mend soon.

m0nk3yboy wrote:
Rubb Ed wrote:

*sigh* 2013 can NOT end soon enough.

QFMFT!

Good thoughts to you all.

f*cking A.

Sorry to hear it PR/Rubb.

Eleima wrote:
Phoenix Rev wrote:

It started out with a rather ignorant coworker recoiling and grabbing the hand sanitizer when I mentioned to her and a group of people that they think I have MS.

Ugh, I don't think I could've shown restrain, and probably would've remarked "it's not contagious, you moron." *facepalm*

Just imagine what'll happen when she learns he has The Gay.

Happy Thanksgiving. My cousin is in this pic. She is one of the balloon handlers.
IMAGE(https://dl.dropboxusercontent.com/u/43352521/Hello_Kitty.jpg)

Wow.

Yes, Happy Thanksgiving guys.

Good evening, all.

I noticed a comment by Nomad in the P&C forums regarding my health and had a PM about it as well, so I thought I would give a quick update here.

I have been in retreat mode for a while and not very active in posting because I have been overwhelmed with all of this, but here is the run down.

In five weeks, it will be one year since the first initial sign of the neurology problems started. However, there is still no formal diagnosis.

When I last posted, I was being evaluated for MS and had been going through multiple MRIs and other tests. What I expected to hear was either "You have MS and that is causing the headaches" or "You don't have MS so we don't know what is causing the headaches." What I heard, unfortunately, was "You have MS. Oh, and it has nothing to do with the headaches." That was two weeks ago.

With that, a spinal tap was ordered which will happen this coming Thursday. This will be to formalized the diagnosis of MS and tell me which flavor of MS it is and what type of treatment, if any, would be appropriate.

So, there is where we are with things. I am waiting for the results of the spinal tap and then will probably file for disability due to the pain issues continuing on and on. But, without a formal diagnosis, the bar is high for qualifying for the short term disability and then the long term disability.

Despite being a bit on the quiet side lately, please know that the Goodjer community is always in my thoughts and prayers.

I will post again post spinal tap (where I hope I get an "11" in the results).

I don't have anything helpful to say, but you're in my thoughts! Good luck with everything.

Thanks for the update, PR. You've been in my thoughts. If there's anything the community can do, please let us know.

I hope you get the result you need to qualify for short-term disability. I have my own neurological issues and it is scary not knowing what is going on and being told that they don't know either. Thankfully they finally figured it out, well kind of but I was able to manage based on what they diagnosed. I'm sending any spare cosmic energy your way and hoping for the best.

Ouch. Still not knowing about the headaches on top of that must be incredibly frustrating.

And yes, we're absolutely here to help however we can.

I have been thinking about you guys and wondering what was going on.

I send all the internet hugs the tubes can carry.

Best of luck, PR. Let us know if there's any way we can help.

And I totally missed the first quotation mark on the 11.

IMAGE(http://i.imgur.com/Yygxuce.gif)

Maybe the first quotation mark was a mistake. /hopeful

...they still don't know? What the f*ck? Where's House! I need him on this case stat!

*big hugs*