Good thoughts for Phoenix Rev appreciated

I really should get a t-shirt that says "+10 to Frustration."

On the day before I headed back to Phoenix from my wonderful anniversary cruise and vacation, I found that despite having a written authorization to have the original lumbar spinal MRI, my health insurance denied the claim stating I didn't have authorization. So, I got to spend this past Monday on the phone with my HI carrier and their constant lies about why the claim wasn't paid including the whopper that it takes them 35+ days to post an appeal to an individual account. They didn't approve the claim because the appeal hadn't been attached and I jumped the gun by getting the MRI, you know, after I was told I could get it done.

They finally did pay the claim which made me despise health insurance as a commodity even more because my entire appeal process was based on the cost of the contrast. The HI said they would pay for the MRI without contrast, but not WITH contrast. The amount that was paid for the contrast...

$47.00.

Adding to the wonder of that was a problem at the MRI center were I was to get my last two MRIs done before I see the doctors on Friday. I show up on time, check in, get taken to an MRI and... I don't fit. They forgot to reserve the MRI for us full-figured preachers. I left and am rescheduled for the "Larger than Petite" MRI machine tomorrow.

As least the people at Barrows were great about it saying it was there mistake and working hard to make sure I got an appointment for tomorrow.

Still, it is all very frustrating.

I really should send a note to Pope Francis requesting a "patient as a saint" designation.

Not sure you should do that. It seems that "Catholic" may not actually mean what it once did, if you're not part of the Church. Although Francis does seem like one of the good ones, maybe he'll give a Protestant a break...

I don't really have a lot of positive energy in my own life right now, but all of it is going out to you right now, PR.

Phoenix Rev asked me to update the thread after his appointment this afternoon.

It's not good.

We have apparently hit two options here: either the doctors are still stumped as hell as to what's going on, or it's Multiple Sclerosis.

The MRIs from yesterday show an "area of concern" in his neck that's similar to the one in his brain. So they want another brain MRI to see what's going on there, as well as having him see an MS specialist and an endocrinologist.

I just don't even know what to ask for at this point, so I guess I'll just ask for prayers and positive thoughts for Zach. And maybe a winning lottery ticket or two thousand.

Well, for what it's worth, I think "maybe it's MS" is the neurologist version of "maybe it's lupus" on House. (They thought I might have it for awhile: turned out to be a severe reaction to aspartame.) So I wouldn't get too panicky about anything just quite yet.

PR + Rubb - still thinking about you two.

The treatments for MS have been steadily getting better for the last few years. We've been dealing with my wife's MS diagnosis for about 8 years now.

If you've got questions, or just want to talk to some folks who've been through it, drop a PM and I can set something up.

Hugs, kisses, and Hello Kitty.

McIrishJihad wrote:

PR + Rubb - still thinking about you two.

The treatments for MS have been steadily getting better for the last few years. We've been dealing with my wife's MS diagnosis for about 8 years now.

If you've got questions, or just want to talk to some folks who've been through it, drop a PM and I can set something up.

Hugs, kisses, and Hello Kitty.

+1 - my cousin has been battling MS for about 15 years now. Much love to you both.

Tanglebones wrote:
McIrishJihad wrote:

PR + Rubb - still thinking about you two.

The treatments for MS have been steadily getting better for the last few years. We've been dealing with my wife's MS diagnosis for about 8 years now.

If you've got questions, or just want to talk to some folks who've been through it, drop a PM and I can set something up.

Hugs, kisses, and Hello Kitty.

+1 - my cousin has been battling MS for about 15 years now. Much love to you both.

Thanks for sharing that guys.

Take some comfort from this, if you can RubbRev, plus, oodles of positive thoughts for you both.

I'll be thinking about you two. I don't know if there's anything else I can offer, but I will be out here with my very best wishes for both of you.

Yeah, I feel like sh*t... and I am going through some things... but I still wish more than anything I could help to spare you two that.

If you guys need anything, just let us know. I will certainly have a little money to spare post-move, and would be glad to put it towards something to help you two out.

Demosthenes wrote:

Yeah, I feel like sh*t... and I am going through some things... but I still wish more than anything I could help to spare you two that.

If you guys need anything, just let us know. I will certainly have a little money to spare post-move, and would be glad to put it towards something to help you two out.

Agreed, shout out before the Steam Sale hits! I'm sure my dollars will be better placed here, than in another's pile of shame.

You all are very kind and I appreciate the supportive words.

It has been a very tiring and difficult day. Rubb Ed gave you the highlights, but there was a lot covered over the 90 minutes I was in the examination room. The two neurologists have definitely ruled out any form of epilepsy, but they said the spinal MRIs point to MS and gave me the name of the MS specialist at Barrow along with an endocrinologist at Barrow to get more answers. They both said they were shy about giving a definitive diagnosis of MS because I am not showing "classic" symptoms of it, but I am showing several other symptoms of the disease. Of particular concern was the change in how frequent the stabbings pains are and what I am doing when they occur. It used to be just from coughing, sneezing, having an orgasm, or pushing during urination. Now, I get the stabbing pains when I lie down and then get back up or stand up suddenly or bend over to pick something up.

We discussed the various types of MS, and we went over all the test results. Everything was fine except the MRIs and a couple of issues with the blood work including a Vitamin D deficiency and low testosterone. The latter was a surprise to the neurologist because of my incessant libido, so they are referring me to the endocrinologist to see if she can determine the disconnect.

My friend Kerry from work went with me to the examination with me and I said to her as we drove away, "So, they are afraid to say for sure that I have MS, but they seem convinced I do and want verification, right?" Kerry agreed. I understand their hesitance. They both tend to treat epileptic disorders and not MS, so they are having me see an MS specialist. That makes complete sense.

They also took me off one medication and put me on three new ones to help with pain management. They said that if these last ones don't work, then we have to look into the realm of stronger medications that have plenty of side effects, especially those in the narcotic class.

I am just trying to take this all in, and some of the grieving has set in because I have had to make so many lifestyle changes in the past few months. It is unnerving to not be able to pick up things off the floor or be able to ride the thrill rides at Disneyland because of stabbing pains in the forehead.

Luckily, I do have a very good support system, but to be honest, I feel like crawling into a corner and curling up and just hide away for a period of time.

The next stop is the MS specialist and the endocrinologist, and, I am sure, more fights with my health insurance.

Also, please don't limit your purchases to hold on to money that you may wish to funnel to us. We are doing okay on that front.

Thank you all so very, very much for your love and support. It really means so much to me and Rubb Ed.

If it does turn out to be MS, you might consider looking into 'helminthic therapy', which is actually a thing.

See, our immune systems co-evolved with worms. Until relatively recently, all humans carried a worm burden, And a whole branch of our immune system is designed explicitly to find and kill worms, while worms then have a bunch of chemicals they secrete that moderate our immune response. Worms and humans go back a long, long way.

Well, in the absence of worms, the worm half of the immune system can get sensitized to, and attack, the wrong things. Allergies are probably the best example; allergies appear to be the immune system misidentifying pollens and dander as a threat. But things like lupus and celiac disease and, well, MS, are all other symptoms of an immune system that's gone off kilter.

So, helminthic therapy is still pretty new, but they basically give you pig whipworm eggs. They grow in your intestine just like they would in pigs, and they moderate your immune response like they would in a pig, but they can't reproduce in humans, so they eventually die of old age. So you need new eggs every so often, you're not infectious, and if you ever decide you don't want them anymore, you can just stop ingesting new ones, or of course take a de-wormer and kill all of them within a couple of days.

I also saw a new treatment that looks especially promising, one that sort of 'resets' the body's immune system not to chew on myelin so much. That's still in second-phase trials, but might be ready for you just in time.

Regardless, if it is MS, I'd definitely look into the worm treatment. It's supposed to be pretty amazing for allergies, too, if you have them.

Positive thoughts heading your way. Thanks for keeping us informed as to what is going on.

Sorry to hear that there's more bad stuff coming your way. I hope the endocrinologist and MS specialist have more answers for you. Not much of a surprise that they're struggling with the diagnosis, MS or else, it's not a clear cut case for sure. Hopefully, you'll soon have answers though. Fingers crossed.
If it is indeed MS, I'm going to second Malor's suggestion ofhelminthic therapy, there's been a few studies on it, and it does seem promising. No miracle cure of course, but it does seem to have good results.
Sending positive vibes your way++++

m0nk3yboy wrote:

Take some comfort from this, if you can RubbRev, plus, oodles of positive thoughts for you both.

Hehe, RubbRev... Love what you did there. I think we should use it exclusively to speak of them, from now on.

Well, we are the new Brangelina.

Rubb Ed wrote:

Well, we are the new Brangelina.

RubbRev

Makes them sound like an 80's hip hop act.

PRG013 wrote:

Good thoughts to you.

Vitamin D, huh?

That is disgusting, terrible, and hilarious.

I like it.

Phoenix Rev wrote:

not be able to pick up things off the floor

Maybe try something like this for the time being?

IMAGE(http://i.imgur.com/JJBPOke.jpg)

Sadly I could not find a hello kitty model.

You could get hello kitty stickers or decals though. I would be happy to send those to ya.

Against better judgement, I was still kinda hoping the doctor would tell you to take this pill, get a good night's sleep and your troubles would be over.

If there's anything I can do, please let me know. You're in my thoughts, Zach.

Love & Internet hugs guys! What happens when RubbEd hugs PhoenixRev? RubbRev

There's more than "RubbRev" going on there, I can assure you.

RubbRev reminds me of Red Rum except that RubbRev backwards is verbbur.

/non sequitur

ClockworkHouse wrote:

RubbRev reminds me of Red Rum except that RubbRev backwards is verbbur.

/non sequitur

Clocky! Now everyone knows their safe word...

Stunning revelation! I didn't erase those tapes like I promised! Just proof that trans people are inherently deceptive!

Spoiler:

Zach and Dave, I want to give you guys all the hugs.

Spoiler:

We will gladly accept them.

Spoiler:

I also am here to deliver hugs, though I will let you guys sort out any tangential butt squeezes yourself.

WHY IS EVERYBODY WHISPERING

Amoebic wrote:

WHY IS EVERYBODY WHISPERING

CLOCKY STARTED IT