Glad RubbEd is there to pamper you and wait on you hand and foot and why do I feel like he's stabbing a voodoo doll of me right now?
If your head is hurting, I have meds for that.
Well at least this thread is popular enough to get spam.
Oh PR I'm so sorry you didn't get some answers or at least direction today. I wish you both the mental, emotional, and spiritual strength to cope with this process.
Sorry to hear it wasn't the day you wanted.
Waiting it out sounds tough, but at least you still have options, and it sounds like they are making sure they can have as many of those on the table for you next time you meet, given the amount of blood work they are undertaking, etc.
Good thoughts and well wishes to you both, plus ((((( hugs)))))
It's not lupus.
I'll say more later when I'm at the computer and not in my tablet.
And spammer, you are bad and should feel bad.
It is never lupus.
Joke aside, big hugs for both of you. I can't even imagine what you guys are going through... but if there is anything we can do... just say the word.
I was afraid of this. So sorry they don't have a better idea of what's going on, but at least they're looking for answers and not pretending they know. My thoughts are with you guys.
Also,it didn't sound like lupus.
Don't need to apologize. We're listening.
<3
Well sh*t. That's a crappy outcome. I was hoping for good news as I had a dream about you two last night and, to be honest, it got a little weird. A bottle of mezcal and a pair of 1210s. But I digress.
Much love from the frozen north and hoping for some good news for you both soon.
Rubb... I feel no differently about you than before. What you're feeling is completely human, and we're here.
Fingers crossed that the docs will figure it out. Docs don't like being in the dark either.
Much love to the both of you, hope things will start looking up soon.
I can't express it better than those above. Hope they find something soon. Take care.
Rev and Rubb, I can't begin to imagine the frustrations you guys are experiencing, both now and in the last few years. Nobody here is going to look down on either of you if your thus far remarkable grace cracks a little.
Rubb, somewhat pertinent to your rant, while my hardships have been nowhere near what you have experienced, some day this sums up how I feel about life and the Universe, with apologies to those of a religious bent.
Don't need to apologize. We're listening.
<3
+1
Our continued best to you both.
Our virtual shoulders are still right here. Keep leaning, fellas!
((hugs))
Our virtual shoulders are still right here. Keep leaning, fellas!
((hugs))
+a bunch. I'm sorry as hell that this isn't a simple "take 2 and call me in the morning". We're still pulling for you both; things will turn out right, I just hope it's sooner rather than later.
Aries wrote:Our virtual shoulders are still right here. Keep leaning, fellas!
((hugs))
+a bunch. I'm sorry as hell that this isn't a simple "take 2 and call me in the morning". We're still pulling for you both; things will turn out right, I just hope it's sooner rather than later.
Also this.
And Rubb, no worries, man. I totally get where you are coming from there. Sometimes things are just the worst, and I can only say I am glad that we didn't hear about your feelings on the matter via the nightly news. I can't imagine not snapping in that scenario if I didn't have someone to talk it out with or some video games like Saint's Row where I couldn't be uncivilized for a while before deeming myself fit for human interaction again. Just remember, we are all here for you guys and are pulling for you and will do whatever we can to help. As my wife refers to me as her bear due to my general hairiness, I offer you both big *bear hugs*. Gentke ones for PR until he is ok for the real ones.
Oh, guys, I'm so, so sorry. How incredibly frustrating it must be to have no definitive answers, and still be dealing with all of this. I'm so glad that you have each other, and a safe place here to vent. We're not going to judge you for struggling - we just wish we could make it better.
Much love and huge hugs to both of you!
Day One of the new meds has been an interesting one. I got rid of a lot of side effects with the meds from ER and now have a whole new series to deal with.
One of the meds has given me horrible dry mouth to the point where I feel like it is lined with cotton. And focusing on things seems to be quite the task. The upside is that the need to walk with the cane is gone (at least for now) as the other medication was really making my sense of balance very wonky. And, with all pain and/or neurological medicines, drowsiness creeps up at various times.
One of the other scripts I was given is some mega medicine that I am to take in an emergency such as what happened that landed me at Barrows ER to begin with. The whole thing surrounding it is interesting. My insurance required a preauthorization for it and the generic tabs were pretty pricey. Also, I was only allowed to get six pills at a time and have to get another authorization for a refill. What concerns me most about this medication, however, is the big warning that if you take it, you have to avoid heat and sunlight for a while. Phoenix. August. Today's high: 113 F. Oh, this ought to be fun.
Rubb Ed has been fantastic in taking care of me and making sure I take my meds and am drinking plenty of water. And, of course, he is excellent eye candy which all the medical journals say is good for neurological disorders.
It was a small gesture of thanks, but I did take him up to a nice cigar store in North Scottsdale (they were having a Gran Habano cigar event) and let him wander the humidor and pick out a few treats for himself.
I am trying to keep some normality here, but it is really hard not to obsess on the fact that we are 2-3 months out from really knowing anything more.
That's more painful than the continuous headaches and the stabbing pains in the forehead.
(And, of course, thank you all for letting both me and Rubb Ed vent here. It really does help.)
Phoenix. August. Today's high: 113 F.
But it's a dry heat, right?
Hugs guys!
Phoenix. August. Today's high: 113 F.But it's a dry heat, right? :D
I wish. Right now, Rubb and I are sitting on the patio of the Bunkhouse, a local gay bar, enjoying a drink, and it is raining, so the humidity and heat are a tad uncomfortable. But, it's nice being out and about.
P.S. Rubb is sexy as hell smoking a cigar. /wriggles eyebrows.
Rubb Ed/PR,
I've been away for the weekend, but was just catching up. Not knowing truly is the worst as you can't start moving forward yet.
Stay strong. You have each other so the struggle can be shared. You have a deep, committed love that you can draw strength from. And you have a host of supporters offering prayers, karma, and apparently stickers.
It was a small gesture of thanks, but I did take him up to a nice cigar store in North Scottsdale (they were having a Gran Habano cigar event) and let him wander the humidor and pick out a few treats for himself.
Best husband ever. Reminds me of when I was having an absolute sh*t week, and Arkham City had just been released (the ads were all over the internet and TV) and I came home to find it sitting on the table with a note from my wife to have some fun while she was at her D&D night.
You picked a winner there, Demo.
Rubb Ed and PR I hope you had plenty of time in the same zip code and I hope you're able to have a bunch more soon. You're in my thoughts and I'm hoping for the best for you guys.
Thanks, Dr.
Rubb Ed left this morning and is safely back in SoCal. It was an exceptionally emotional weekend capped by a very emotional parting. My home just feels so ... empty.
I did return to work today and everyone has been checking in on me and making sure I take my breaks and do overwork myself (which is easy to do where I work). While I was having lunch at the deli in our building where I work, the head of our HR department spotted me and checked in on me and brightened my day saying, "I look at you and Dave and realize that even though I am divorced, there is still a strong probability that I will find a loving relationship like the two of you have."
And, because I have to needle him some, while he was here, Rubb Ed made me work on his car (AC needed fixing), buy him cigars, and do his laundry.
He's a beast.
You picked a winner there, Demo.
I certainly have no complaints.
Glad to hear you have a supportive work environment, PR. My office has done some similar stuff form employees too. Stroke and heart attack and a tubal pregnancy and a terminal father where employee was basically given a work laptop and told just to do simple work while his father was out and they would make sure he got the 40 hour paycheck. There are some things I certainly don't love about my office... but stuff like that can make a world of difference.
Glad to hear you have a supportive work environment, PR. My office has done some similar stuff form employees too. Stroke and heart attack and a tubal pregnancy and a terminal father where employee was basically given a work laptop and told just to do simple work while his father was out and they would make sure he got the 40 hour paycheck. There are some things I certainly don't love about my office... but stuff like that can make a world of difference.
Indeed. I also signed the paperwork today for donated leave if I am out for an extended period of time and use up my sick time. People can donate theirs and it is factored out dollar for dollar, so if the CEO donates, say, one hour of leave, that probably translates into quite a few hours for me. That way I still get a paycheck and such. HR is also meandering through the FMLA rules and my short-term disability policy to see what benefits I can use there to keep everything going.
It is comforting to say the least.
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