Autism thread

We can only get him to take liquid meds this way, but we lie him flat on his bed and give him 1-3 ml at a time and wait for him to swallow. I try to squirt the liquid down the side of his mouth so it doesn't gag him. We've found that if his head is even at a slight angle, like on a pillow, he'll easily be able to spit it out, but perfectly flat, it's difficult. I think he'd be able to spit it out if we put more volume in at once as well. Maybe other kids can spit it out even perfectly horizontal though, due to better oral motor skills.

We wound up taking our son to the ER last night because he's been crying and fussing and yelling nonstop. After 9 hours, the best answer we can come up with is walking pneumonia, since he tested positive for that particular bacteria's antibodies. It took intranasal sedation and 4 people wrestling him for the nurse to get the IV started. Then, my wife and I spent the next several hours physically stopping him from pulling it out, which was very draining and frustrating for all involved. They used the trick of putting diapers around his hands like makeshift boxing gloves, and this helped for a while until he started biting at them. Eventually he got so pooped he gave up and fell asleep. Of course he woke up again later when it was time for his IV antibiotics.

Anyway, needless to say, we looked on with great envy at the family across the hall whose kid just watched Ipad videos while his mom sat there and looked at her phone.

The ER doctor actually wanted to admit him to the hospital, because she wasn't convinced the walking pneumonia would account for some of the abnormal lab values. The thought of confining him to a hospital room while he was pacing and screaming and getting into things there and not sleeping was very distressing. I interrogated the doctor at length about what they would do there... further tests? Additional treatments? I told her they'd have to pull the IV out because it was only a matter of time until he took it out with his teeth. It sounds like the main thing is she wanted to observe him. She revealed that she sent a child out not too long ago and wasn't really sure what was going on with him and he died an hour after being discharged. I'm sure this influenced her decision. Turns out he had an infection of the heart tissue. Sounded like a rare, freak occurrence to me, and after speaking with my wife, we elected to take him home and monitor him here, where he's more comfortable.

I never thought I'd ever be the type of person to sign myself or a family member out of the hospital against medical advice. It was a bit of an agonizing decision and the doctor gave us this look like we were being derelict parents. I wish people would understand that he's not going to just sit there in the hospital room, watching TV. It would have been torture for everyone involved.

Anyway, he's still miserable and pacing and crying, but he's drinking and obviously in no imminent medical danger, so I'm sure they would have already discharged him by now even if he were admitted, so we made the right choice in my mind.

I just wish things were easier. And now I have done my unloading for the day.

Wow, sorry it's been so rough, Gewy. I hope your son feels better quickly.

Gewy - I hope your son is doing better today.
I really admire both the love and raw pragmatism of what you are going through and what you are doing. I hope you and your wife can get a brief respite but please know a lot of us are thinking of you and I wish there was more that could be done for you at our distance.

Thanks for the thoughts. Everything is status quo today. Wish he’d be getting better after two doses of the antibiotic, but the fact that he’s still drinking fluids and active (albeit miserable) confirms to me that hospitalization would have been useless.

Large bruise on his jaw is back... must have hit himself again some time this morning.

I think we’re in the home stretch for this illness finally, after 16 straight days. Last night my son started vomiting again and had diarrhea, so we were freaking out. But it’s gotten better today and he even ate a little bit.

Plus, I started with the nausea and vomiting myself so I’m pretty sure he just got a stomach virus in the ER or the pediatrician’s office. No need to worry about something more severe.

Ugh, I hate nausea. I might rather be in pain. Feel so bad for my son having to endure that.